Youth participation in healthcare
The overall aim of the project is to study, develop and evaluate the implementation of support for children's participation in care processes.
Several sub-projects and doctoral projects are included with a focus on children's participation in various activities in pediatric health care, habilitation, school and care:
- To strengthen children's participation in their care through the development and validation of digital interactive assessment and communication tools
- To strengthen children's participation in their care through the implementation of assessment and communication tools
- To measure children's self-rated experience of their participation in care, school and care
- To investigate norm structures that influence the view of children's participation and to intervene to promote children's participation by shifting norms
About the project
Project period:
- 2013–2024
Financiers:
- Barncancerfonden
- Norrbacka-Eugeniastiftelsen
- Region Halland
- Reumatikerfonden
- Region Skåne
- Södra sjukvårdsregionen FoU
- Vetenskapsrådet
- Stig Thunes fond
- Svensk Sjuksköterskeförening
Collaboration partners:
- Region Halland Hallands sjukhus
- Barnkliniken Hallands sjukhus Halmstad
- Region Skåne
- Kuratorenheten vid Karolinska Institutet Stockholm
- Galaco AB
Project leader:
Other participating researchers:
- Britta Teleman
- Caroline Karlsson
- Elin Vinblad
- Susann Arvidsson
- Ing-Marie Carlsson
- Ingrid Larsson
- Britt-Mari Gilljam
- Carina Sjöberg
Publications:
- Child participation in health care (ChiPaC)—Development and psychometric evaluation of a self‐report instrument for children's participation in health care. Gilljam B-M., Arvidsson S., Nygren J.M., Svedberg P. Journal of Clinical Nursing. DOI: 10.1111/jocn.15063
- Parents’ experiences of an e-health intervention implemented in pediatric healthcare: a qualitative study. Larsson I., Svedberg P., Arvidsson S., Nygren J.M., and Carlsson IM. BMC Health Services Research. 2019.https://doi.org/10.1186/s12913-019-4643-7Länk till annan webbplats.
- Barriers and enablers for successful implementation of the eHealth solution Sisom for child participation in paediatric care - a multi-centre study. Svedberg P., Arvidsson S., Larsson I., Carlsson I-M. Nygren J.M. Journal of Medical Internet Research. 2019.
- Development of a Digital Decision Support Tool to Aid Participation of Children With Disabilities in Pediatric Rehabilitation Services: Explorative Qualitative Study. Vinblad E., Larsson I., Lönn M., Olsson E., Nygren J.M., Svedberg P. JMIR Formative Research. DOI: 10.2196/preprints.14493
- Children and young people's participation in developing interventions in health and well-being: A scoping review. Larsson I, Staland-Nyman C, Svedberg P, Nygren J, Carlsson IM. BMC Health Serv Res. 2018 28;18(1):507
- Patient participation, a prerequisite for care: A grounded theory study of healthcare professionals’ perceptions of what participation means in a paediatric care context. Svedberg P., Nygren JM., Carlsson I-M. Nursing Open 2018 5(1):45-52.
- Involving Children With Cancer in Health Promotive Research: A Case Study Describing Why, What, and How.Nygren, JM., Lindberg, S., Wärnestål, P., and Svedberg, P. JMIR Res Protoc 2017;6(2):e19.
- Evaluating Digital Peer Support for Children Cured from Cancer. Lindberg S, Svedberg P, Bergquist M, Nygren JM. Int J Human-Computer Interaction. 2017 33(8):664-676
- Participation in paediatric perioperative care: ‘what it means for Parents. Sjöberg, C., Svedberg, P., Nygren JM., and Carlsson I.M. J Clin Nurs doi: 10.1111/jocn.13747
- Redesign and validation of Sisom, an interactive assessment and communication tool for children with cancer. Arvidsson S, Gilljam BM, Nygren JM, Ruland CM, Nordby-Bøe T, Svedberg T. JMIR Mhealth Uhealth 2016;4(2):e76.
- Promoting participation in healthcare situations for children with JIA; a grounded theory study. Gilljam BM, Arvidsson S, Nygren JM, Svedberg P. Int J Qualitative Stud Health Well-being 2016, 11: 30518.
- The perspective of children on factors influencing their participation in perioperative care. Sjöberg C, Amhliden H, Nygren JM, Arvidsson S, Svedberg P. J Clin Nurs. 2015. 24(19-20):2945-53.
More information
The project is part of the Healthcare improvement research group.
